“Awakening” or #Будење (the official communication hashtag for the campaign) was the first successful step to rise the awareness for young kids with rare diseases and disabilities in our small, fragile but full of prejudices society in North Macedonia.
Our aim was to use art to break down barriers, to give them a stronger voice in the community and to show our friends and families in the same situation that they are not alone.
The impact and the success of this campaign made the authorities to see this problem and take an action to ease the institutional and medical barriers for this kids.
We managed to make those people and their everyday problems visible to the whole nation and Jane, one of our stars, now is UEFA #EqualGame Ambassador (click here for the video)
“Who is the author of this poem?” is a short film about saying “Thank you” to the person that has been always there for you supporting in everything you’ve dream of.
Aleksandar Matovski – Cako is a young boy from North Macedonia with Down Syndrome, radio host, European Dance champion and UNICEF’s Representative for people with disability.
He wrote the concept and the script for this video that he dedicated to his mother as a gift for all the support she gave it to him.
The video followed a surprised public premiere organized without his mom’s knowing.
Concept and script – Aleksandar Matovski – Cako
Video and editing – Elena Fidanovska
Supported by UNICEF and Dancers United
Candid camera for a donation
Iva suffers from Congenital Muscular Dystrophy – Merosine Negative (CMD). It is a very rare disease that affects 1 in 500,000 children worldwide.
As part of “Life with challenges” project, with an initiative and private clinic donation, Iva got her breathing machine – a present that can help her continue with her daily activities.
In Macedonia, to our knowledge, Iva is the only child with this rare disease. She is unable to walk, use her arms fully, get up and sit down. She is not able to cough properly, and her breathing is on a thin line of tolerance.
In order for a child with Congenital Muscular Dystrophy – Merozin to live, it is necessary to use a Bi – Pap machine (breathing support machine) and Cough machine (coughing machine).
Iva is now 8 years old. She is an intelligent, happy and fulfilled child with a wide smile in whose eyes radiates a desire for life. She is especially happy at school surrounded by her friends. If you ask her what fulfills you the most, she will answer without thinking: reading, I love reading books, I can read for days. She loves traveling and making friends, and when she grows up she wants to become a translator, because from a very young age she is fully committed to learning English.